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Through The sky With Type 1 Diabetes

5/20/2018

16 Comments

 
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​Flying by air can always be a little nerve racking. “Did I bring enough? I feel like I forgot something? Is TSA going to be an issue? Will my carry-on be allowed?” Now add Type 1 Diabetes to the mix and suddenly all those questions are elevated times a million. There have been many conversations about traveling with Type 1 on my Instagram (@glitterglucose) so I thought I should make this post as a reference with all the info you need to know when flying!
​PACKING
The number 1 rule when it comes to packing: ALWAYS BRING MORE THAN YOU THINK YOU NEED! Traveling is stressful enough. I don’t like to add more stress by worrying whether or not I have enough supplies. You might feel like a crazy person for packing so much but I always like to be better safe than sorry! My rule of thumb is to gather how much supplies + backup supplies I would normally carry on an everyday basis then DOUBLE it. 

ITEMS THAT MAKE TRAVEL EASIER

  • Myabetic: I always travel with at least one Myabetic bag. I like to use the Brandy Backpack from my supplies while flying. I use the James Compact Case to keep my meter in my purse and poolside. Both the Brandy Backpack and James Case have insulated pockets which is the main reason I prefer to use those for travel. (Promo code GLITTER for 15% off!)​
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  • Frio Insulin Cooling Case: The Frio case is a lifesaver for me all year round since I live in the Arizona desert! What it is: It’s a pouch that keeps insulin cool without refrigeration or ice! It’s activated by soaking in water for 5-10 minutes and stays cold for 2 days! After the 2 days you can just soak again and its good for another 2 days & so on! There are different sized pouches for pens and vials. (Promo code GLITTER for 15% off!)​
  • MedAngel: I have a full blog post on this amazing temperature sensor. It is a small sensor that it specifically meant to protect medications (including insulin) from reaching unsafe temps. It connects to your phone via Bluetooth and sends alerts when medication is reaching unsafe temps! More in depth details can be found HERE along with a coupon! 
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  • Medical ID Jewelry: I’m guilty of not always wearing a medical ID but I feel that it is extremely important to wear one when traveling. Traveling pushes you into situations where you are surrounded by strangers. In case of emergency, you will most likely be surrounded by people who have no idea who you are or how to help. I 100% always wear a medical ID when traveling! I have a fancy one that I wear throughout the day and a silicone one I wear in the pool. I have a video all about medical ID’s, coupons and my favorites H​ERE! 
Lauren's Hope Medical ID

​TSA

I think TSA makes anyone nervous! The agent you first encounter rarely ever smiles. Then you get pushed into a line where everyone is scrambling to take their shoes, pull their laptop out, get their liquids situated, get everything out of pockets. Next thing you know you are barefoot in line waiting to go through a scanner, x-ray or pat down. 
 
Here is where the American Disability Act comes in to protect those living with Type 1. You can opt out of any x-ray or body scanner and request a pat down instead. Most insulin pump and CGM companies recommend that you do NOT go through x-ray machines or body scanners. (I am guilty of just going through the scanners on occasions where I am short on time. Nothing has ever happened to my pump but manufacturers still don’t recommend this.) You can ask to go through a regular metal detector but usually your device will set it off anyway. What’s the difference between these machines?
  • Full Body Scanner: This is the most popular method airports use to screen passengers. You step into a pod-like machine where you are asked to put your hands up. It scans you front/back/top/bottom.
  • X-ray: This is used to scan your carry-on items. It is a conveyer belt used to scan anything you are carrying with you. Example: carry-on luggage, purse, laptop, shoes.
  • Metal Detector: This is sometimes used when the line for the body scanner is too long and TSA wants to get passengers through quicker. It is also used when a passenger is in a wheelchair or if a passenger opts out of the scan.
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Personally, I just opt out of the body scan and metal detector and ask for a pat down. Please note that they cannot force you to walk through the machines, but they might try to persuade you. Please do what feels right to you. Usually you will be asked to rub your pump/CGM and then they will swab your hands for “explosives.” There have been a few times where something was detected on me and an alarm came up saying “EXLOSIVES DETECTED!” I’m not sure what caused it but that’s when my pat down turned from slightly uncomfortable to extremely intense! It took quite some time to go through the procedures. Getting through TSA has never ever been the same procedure twice. Each time has been different even when going through the same airport. Just prepare for the unexpected and plan for extra time. 

Liquids: 
  • Insulin: It is always allowed in your carry-on bag. NEVER CHECK IN INSULIN. Temperatures can vary in the cargo area and cause insulin to spoil. 
  • Glucagon: It is original packaging with a label. 
  • Juices and Quick Sugars: Most airports in the US allow you to carry these items through security even if they exceed the 3oz restriction. (strictly to treat hypoglycemia) It is not always guaranteed so I recommend bringing another form of sugar.
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Side Notes:
  • All needles, syringes, and any other supplies you may need can go through security. There is no need to disclose that you are carrying them. If TSA does a manual search of your bag they will ask “Is there anything sharp in here?” You can explain then that you have syringes. 
  • I have never traveled with a doctor’s note but it is recommended. You can have your doctor write a letter of necessity. This may be especially helpful in other countries. ​
If you feel like you still need additional help getting through security, you can call the TSA Cares hotline before your trip. This is a FREE service provided to passengers who need additional assistance. I know many parents of Type 1 children who use this service when traveling. Click HERE to learn more. 

Another service available to ALL travelers is called TSA Pre Check. Please note this is different than Pre-Boarding. Pre Check is a PAID service available to anyone who applies and gets approved. It helps expedite security screenings. 
***I have not used either of these services listed above but I wanted to share for your info.
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PRE-Boarding

Here we go with this subject. When I posted about this on Instagram the comments were on fire. There was a mix of responses. I will round up the top responses for you:
  • “I didn’t know that was an option!” 
  •  “Yes, I always do it! It grants me peace of mind.”
  • “Diabetics don’t often get perks, so this is one I enjoy”
  • “DIABETES IS NOT A DISABILITY!!!!!!!!”
  • “YOU, US, WE diabetics should not take advantage of this!”
  •  “How do we use this option?”
 
Let me start by saying that the option of pre-boarding is granted to ANYONE who states they have a disability (visible or not) and want to pre-board. You don’t need to prove how “disabled” you are to get on board. Now let me address the word “disability.” I personally do not feel like I am disabled BUT diabetes is by law classified as a disability. That’s why we are granted protection and rights in very many different situations. To learn more about your rights click HERE.

So now on to why I personally pre-board. Please remember that this blog is all about my glittery, girly, fabulous life and I just happen to live with diabetes. I have never claimed to be a diabetes expert or a perfect diabetic. I just share how I personally live my life, what products I like and what works for me. I find it comforting when others share their own experiences and you can give or take what works for you! WITH THAT SAID, I pre-board about 90% of the time. It helps give me peace of mind that I will not be waiting in a long line to board and risk my BG dropping. I can get seated and have guaranteed room for my carry-on. I don’t want to risk having my supplies far away from me. Also, I suffer from neuropathy and circulation problems, so I like to have room for my feet. I have less stress and anxiety when I pre-board which also helps my BG stability. The list goes on and on but these are my personal reasons for pre-boarding. The option to pre-board is available to those living with Type 1. The choice to do so is your own. To read more from the Department of Transportation you can click HERE.
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How to Pre-Board
This option is available on all airlines because of the American Disabilities Act. I usually fly American Airlines, Delta or Southwest Airlines but it is similar across the board. With Southwest they want you to go to the counter first and say that you need to pre-board for medical. They will print you a new boarding pass that says “Pre-Board.” For all the other airlines, before boarding starts I go to the counter and say I need to pre-board for medical. They just inform me to go up to the boarding door when it is time. (No special boarding pass.) It is important to state beforehand because they may skip pre-boarding all together if they don’t know that there are people on the flight using the service. 
 
It is a very simple, no frill process. They will NOT ask you what your disability or reason is. The airline can receive big fines for asking this question. There are times that they will ask if you want help stowing your stuff above, if you need a wheelchair or if they can help you with anything else. Please know that the airline is happy to help. A quote from someone who works on the disability team at one of the airlines listed above, “We do not consider pre-boarding taking advantage of those laws and regulations that were put in place to allow all passengers the same experience.” 
 
I hope my personal experience’s help you with your future travel. Please let me know if this information was helpful to you! Safe travels! 
16 Comments
Johana Quintana
5/21/2018 06:42:11 pm

This has been my favorite, so far. All your posts have been great but this one has to be one many of us will go back to time to time when traveling.

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Jeff
5/21/2018 09:39:14 pm

Someone I was traveling with flagged one time as having explosives detected on his hands. They did a different test and found it wasn’t explosives after all. The TSA agent said the most common culprit is hand lotion. Apparently the petroleum in certain lotions are read by the chemical analyzer as residual explosive materials. Since then no lotion, no flags on travel day.

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Maricela Rodriguez
5/21/2018 11:02:34 pm

I'm flying to Texas on Thursday and this came right on time. Thanks for the tips which I'll surely use! Keep sparkeling!!!

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Ruby
5/21/2018 11:45:49 pm

Awesome 👏🏼 great info n tips!!

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Damian Ellis link
5/22/2018 09:55:12 am

Great post. Very informative. I was going to do a similar blog post, but for travelling with a T1d child, which my family did back in November. Keep up the great work.

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Michelle Osborne
5/22/2018 02:36:20 pm

Thank you so much for this post! I am traveling for the first time with my 14 yr
Old type 1 son. Only been a diabetic almost 2years. I feel better prepared.

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Kristen link
5/22/2018 07:46:28 pm

Have you considered TSA Pre? The cost is $80 for 5 years. This allows you to go through a faster line usually and you don’t have to take off shoes. I never knew about pre-boarding. I personally like waiting until the end to board.

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Adrianne
8/22/2018 08:51:22 pm

I totally agree with the pre-boarding. I used to never even consider it an option until a medical emergency I encountered on a flight this summer. I was traveling with my husband and we were in the middle section of the plane. During landing my blood sugar dropped to 34...I obviously wasn't feeling well and had gone thru all my sugar tabs earlier. After ringing the call bell and no response and not able to get the attendants attention my husband had to get up during the descent and get some juice for me. Obviously they were not happy with his decision to leave his seat, but they should have been upset that they weren't responding to a medical emergency. After that I read thru all the disability rights and realized that its better to be safe than sorry...especially because there are many times I fly alone or fly alone with my young children. Because of that I have been using the preboard and priority seating to be close to the flight attendant so that they would be able to help me quickly in case of a medical emergency. Thank you for posting your ideas as well.

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Lisa Whitmore
9/9/2018 05:04:58 pm

Just wanted to add a couple things to your terrific travel post. The TSA has volunteer officers that are specially trained as Passenger Support Specialists who work with passengers needing assistance getting through security. Every TSA supervisor is also supposed to be trained as a PSS. When you call TSA Cares the week of your flight, that information gets sent to the designated airports. Ideally you will be contacted by an assigned PSS before your arrival, however some airports just expect you to ask for a PSS when you reach security. In any case, whether you’ve called ahead or not, you can ALWAYS ask for a Passenger Support Specialist. I have found that many TSA officers are unaware of this program, so in that case you can ask for a supervisor. Be sure to ask the first TSA Officer you see at the beginning of the line. I use a PSS whenever I fly, and over 90% of the time I have a great experience. Frequently this assistance allows you to skip the line and go straight to screening with your PSS. (For me that’s a visual inspection and patdown, which can be done privately.) I still have a responsibility to arrive early, organize my supplies, and be informed about rights and responsibilities. It’s a service that is there to be utilized so I try to get the word out whenever I can. A little teamwork goes a long way towards making travel with Diabetes easier!

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Carolyne
10/16/2018 03:39:05 pm

Thank you for this!!! I’ve been having anxiety since I’ve found out we will be going on a trip in a couple weeks. My daughter is 4 years old. Diagnose at 3. This will be our first time flying since she’s been diagnosed. I’ve been doing endless research about going through tsa. I’m more concerned about bringing extra insulin and how to store it being that it is unopened and needs to be refrigerated. I’ve read a lot of the Frio bag helping a lot and that it works for a lot of type 1 diabetics but I also read that the Frio bag keeps the insulin cool and not cold. I’m thinking of just giving it a chance but at the same time I do not want it to go to waste. Please give me your thoughts on it. Thank you so much I appreciate it

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Paloma
10/22/2018 06:56:41 pm

Hi Carolyne! I use the frio when I need to be by the pool or something but when traveling I just use an ice pack in my insulated Myabetic bag. It will pass through security for medical purposes with additional screening. Thanks so much for taking the time to read!

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Nancy link
11/16/2019 11:30:48 pm

Paloma, I used to never at any point think of it as a choice until a health-related crisis I experienced on a flight this mid-year. They did an alternate test and discovered it wasn't explosives all things considered. A large portion of the specialists said the most widely recognized offender is hand cream. Evidently the oil in specific creams is perused by the concoction analyzer as lingering dangerous materials.

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Mys
12/8/2019 03:40:58 pm

Thank you, so helpful!

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Russ
1/3/2020 03:56:05 pm

Thank you so much for posting this. It helps my confidence in helping my daughter utilize services that are meant for people with disabilities.
Sadly, we flew southwest this morning they the lady we very mean and made us feel like crap. You could see she was mad and really did not want to help my daughter. Also I was told my daughter who is still A child would have to board by herself.
People don’t understand the struggles being type 1 can bring. I told them if she passes out for being low it’s on them, they then decided to let me join her.

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Latina Massage Pennsylvania link
4/3/2021 10:46:39 am

Hello niice post

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Kimberly Lang
7/8/2021 08:48:11 am

You ROCK! Thank you for all the tips and for reducing my anxiety! I wish you the best in life.

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